All images and information about DJ from: http://www.djhomepage.com/
Sunday, November 13, 2011
What is everyday life like? What is the quality of life?
Everyday life is hard when you have any form of Tay Sachs Disease. DJ, a little boy with Infantile Tay Sachs Disease, could not sit on his own when he was fifteen months old. After DJ played with his toys, he became exhausted and fatigued. When DJ was seventeen months old he couldn’t hold his head up anymore; his muscles were slowly becoming weaker. DJ would not read anymore because he was too weak to turn the pages of the book. When DJ was twenty months old, he experienced his first seizure; these seizures scared him, but did not cause him any pain. Near the end of his life, his ability to see was almost gone, but he could still hear. DJ died three days before his sixth birthday on March 9, 2003.
DJ is almost two years old in this picture. This picture was taken approximately one year before his death.
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Im sorry thats really sad was that your son. :(
ReplyDeleteIm very sorry for you loss. This must have been very difficult. My condolences.
ReplyDeleteI am sorry for your loss. I truly hope one day someone like me can help to find a cure.
ReplyDeletehopefully their will be a cure oneday soon, im sorry for your loss
ReplyDeletei am so sorry this happened to you i know what it is like to lose someone with tay Sachs i lost my twin sister
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